No place for politicians to meddle

No place for politicians to meddle

Photo by Alejandro Barba on Unsplash

Originally published 28 October 1991

After the tur­moil and con­fu­sion that accom­pa­nied the con­fir­ma­tion of Clarence Thomas to the Supreme Court, you may not want to hear any more about Wash­ing­ton and sex. But there is anoth­er sto­ry that has been qui­et­ly unfold­ing — about Wash­ing­ton, sex, and sci­ence — that deserves a wider airing.

In late July [1991], Sec­re­tary Louis Sul­li­van of Health and Human Ser­vices, under pres­sure from con­ser­v­a­tive mem­bers of Con­gress, vetoed a planned 5‑year sur­vey of teenagers’ sex­u­al behav­ior. The pur­pose of the study was to help this coun­try’s pub­lic health offi­cials bet­ter under­stand pat­terns of sex­u­al behav­ior that trans­mit the AIDS virus. The young peo­ple were to par­tic­i­pate in the study only with parental consent.

The $18 mil­lion project, run by soci­ol­o­gists Ronald Rind­fuss and Richard Udry at the Uni­ver­si­ty of North Car­oli­na, passed every peer review at the Nation­al Insti­tutes of Health. It was approved by NIH direc­tor Berna­dine Healy and the assis­tant sec­re­tary of health. The ini­tial mon­ey had been issued and the study begun before Sul­li­van inter­vened to can­cel the program.

Many sci­en­tists are dis­mayed by what appears to be unprece­dent­ed polit­i­cal med­dling. Charles Turn­er, who for­mer­ly direct­ed AIDS stud­ies for the Nation­al Acad­e­my of Sci­ences and the Insti­tute of Med­i­cine, is quot­ed in Sci­ence as say­ing, “We’re going to be less effec­tive in pre­vent­ing the spread of the epi­dem­ic; in short more peo­ple are going to die.”

Sul­li­van has not pub­licly dis­cussed his deci­sion, but a state­ment released by HHS said he believed the study “could inad­ver­tent­ly con­vey a mes­sage under­min­ing [Sul­li­van’s] warn­ings about the dan­gers of promis­cu­ous sex.”

That was just the beginning.

More studies cancelled

On Sep­tem­ber 12 the Sen­ate trans­ferred at least $7 mil­lion that had been tar­get­ed for the teen sex sur­vey and anoth­er sur­vey of adult sex­u­al behav­ior from the Nation­al Insti­tutes of Health to a “just say no” teen preg­nan­cy pre­ven­tion pro­gram known as the Ado­les­cent Fam­i­ly Life program.

Less than a week lat­er, social sci­en­tist Edward Lau­mann of the Uni­ver­si­ty of Chica­go was told that the Nation­al Insti­tutes of Child Health and Human Devel­op­ment (NICHD) was delay­ing fund­ing for a third sur­vey of Amer­i­cans’ sex­u­al behav­ior. Lau­man­n’s study had received out­stand­ing peer reviews, plac­ing in in the top 2 per­cent of grants reviewed at the time. NICHD Deputy Direc­tor Wendy Bald­win was quot­ed in Sci­ence as hav­ing told Lau­mann that it would be “polit­i­cal sui­cide” to fund the study now.

Mean­while, the nation’s pub­lic health offi­cers have the task of com­bat­ing the spread of an epi­dem­ic with­out ade­quate knowl­edge of the behav­ior pat­terns that con­tribute to the spread.

A recent sur­vey of 1,000 young peo­ple in Dundee, Scot­land, by psy­chol­o­gist Dominic Abrams of the Uni­ver­si­ty of Kent showed that a sub­stan­tial major­i­ty believe they are “extreme­ly unlike­ly” to be infect­ed by the AIDS virus in the next five years, but also believe that half of their peer group will become infect­ed. This curi­ous blind­ness to risk is the kind of infor­ma­tion that can help pub­lic health offi­cials plan pre­ven­tion campaigns.

Of even greater use would be infor­ma­tion regard­ing fre­quen­cy of sex, kinds of sex­u­al activ­i­ty, num­bers of part­ners, and pre­cau­tions tak­en to avoid infec­tion. Until these things are known, pub­lic health offi­cials are grop­ing in the dark.

Some Amer­i­cans, how­ev­er, seem to believe that know­ing what Amer­i­cans do will some­how make them do things they shouldn’t.

Science and politics

It would be naive to sug­gest that gov­ern­ment-fund­ed sci­ence can be — or should be — ful­ly insu­lat­ed from pol­i­tics. Cer­tain mat­ters of fund­ing should only be con­sid­ered with­in the con­text of the polit­i­cal process. For exam­ple, the fund­ing of big-tick­et pro­grams such as the super­con­duct­ing super­col­lid­er, fusion ener­gy research, or the space sta­tion must be mea­sured against oth­er soci­etal needs. Elect­ed mem­bers Con­gress are bet­ter placed to make those deci­sions than any pan­el of scientists.

Sim­i­lar­ly, the Depart­ment of Ener­gy is now faced with the prob­lem of cut­ting back basic sci­en­tif­ic research to pay for clean­ing up the envi­ron­men­tal mess cre­at­ed by 40 years of nuclear weapons research and pro­duc­tion, esti­mat­ed to cost $100 bil­lion over 30 years. Set­ting pri­or­i­ties in this mat­ter is beyond the com­pe­tence of nor­mal sci­en­tif­ic peer review.

It would also be naive to sug­gest that sci­en­tif­ic research is moral­ly neu­tral, and there­fore exempt from polit­i­cal cri­tique. Research relat­ed to the Strate­gic Defense Ini­tia­tive (Star Wars), genet­ic engi­neer­ing, and fetal research are exam­ples of gov­ern­ment-fund­ed sci­ence which the gov­erned have a right to review through their elect­ed officials.

Hav­ing said all of this, I am still made uneasy by reports of the can­celed sex sur­veys. Gov­ern­ment agen­cies charged with the pub­lic good, such as the Nation­al Insti­tutes of Health, must be allowed a gen­er­ous mea­sure of inde­pen­dence from pol­i­tics if their sci­en­tif­ic cred­i­bil­i­ty is to be main­tained. Polit­i­cal appointees charged with the admin­is­tra­tion of sci­ence-based agen­cies should intrude them­selves into the peer review of fund­ing pro­pos­als only with the great­est cau­tion — and be pre­pared to offer sub­stan­tive jus­ti­fi­ca­tion for their actions. A ratio­nale like “could inad­ver­tent­ly con­vey a mes­sage” just does­n’t wash.

It is hard to imag­ine how a sta­tis­ti­cal study of the sex habits of young peo­ple will lead the youth of Amer­i­ca astray. But it could help save their lives.

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